raising awareness of Sarcoidosis

Sarcoidosis is a chronic illness with no cure.

i have a beef with “face id”…

I finally had to upgrade my phone, and I keep wondering why Apple has to change all the good things...like the fingerprint. My fingerprint always worked before, and was the quickest way to unlock my phone. Now that the button is gone, I had to let the new phone figure out my face in order … Continue reading i have a beef with “face id”…

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i vacuum my refrigerator…

Yes, it's true. I vacuum my refrigerator. I also vacuum my drawers and my cabinet shelves. And the bases of my toilets. In fact, I love the vacuum cleaner. I have two vacuum cleaners which I use for different tasks. But more about that momentarily. I let my housekeeper go when I went on disability … Continue reading i vacuum my refrigerator…

a sarcoidosis poem…

This week I saw my rheumatologist and discovered that I have two kinds of arthritis at my reasonably young age-osteoarthritis and inflammatory arthritis, the latter being from the Sarcoidosis. Thank goodness it's just two kinds, because she was originally entertaining the possibility that I also had Rheumatoid Arthritis, so (whew) I'm relieved! So the OA … Continue reading a sarcoidosis poem…

an embarrassing shopping story…

via an embarrassing shopping story...

some cute things…

A word about my other site idressmodest...ignore if you're not interested in fashion! Idressmodest is about inner confidence. It's about women preserving their dignity and getting noticed without feeling like they have to "bare it all." We feel that women's voices can be heard better and respected more if we hold ourselves to a higher … Continue reading some cute things…

retail therapy

 

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I cannot help but connect my two blog sites, this one (idressmodest BLOG ) and itsmyotherlife BLOG when I write, as each is intertwined with the other into the fabric of my current life. I am spending this part of my life indulging my creative side, something that I haven’t had a chance to do until now. I am only able to do this because I am sick and had such a busy life before, that I am unable to do “nothing.” So I have these new passions: home decor, my dress shop and other little side projects that I am learning, like arm knitting.

But today is not about any of that. It’s about me and my day. I woke up feeling about as bad as I can with this strange illness called Sarcoidosis. My head was stuffed with fog and to top it off, I was in a perfectly rotten mood because of a doctor’s appointment that I was dreading.

I’ve been pretty angry at an entire department of the hospital where I get treated. I feel that I’ve fallen through the cracks in the one area that really impacts my quality of life. And recently, I’ve been made, once again, to jump through hoops that the doctors create in order to arrive at their decisions at their own convenience. The problem is that now I don’t have the energy to drive 45 minutes for repeated sessions of “rehab” for a very personal problem. I am not interested in doing rehab. I know it’s not the answer to my current issues, and I am tired of being asked to waste my time and energy on what I consider a stupid idea.

So that was my frame of mind as I drove to my appointment. I apologized to the physical therapist, told her exactly what I thought-that I didn’t want to be there and that I didn’t think it would be useful. I was pleasantly surprised to find her to be an empathetic and patient person. She gently assuaged my fears, didn’t push me into anything that I wasn’t ready for, and above all, agreed with my opinion. So today I decided to give this treatment a shot and hopefully be done with it soon.

But on to the meat of this post. It turns out that after my appointment, I ended up at Target to pick up a couple of things. The sun was literally shining on me at that point. It was 70 degrees on a winter day in Maryland! And if that wasn’t good enough, I got THE very best parking space on the Target lot! What were the odds? So of course, I had to selfie that:

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After enough selfie-play, I made my return and, on my way to what I needed, I noticed a really nice dress on a mannequin. I then quickly moseyed over to women’s clothing where I found the dress and a few more. Target really had some cute dresses today, I soon found out.

Now the secret to dresses, at least for me, is to buy them in extraordinarily large sizes. Everything is cut small these days, and everything shrinks in the wash. To combat this, I buy at least a large if not an extra large. I normally wear a size small. But this ultra-sizing thing gives me instant style! This is partly the reason that I am so hyped about the idressmodest line of “one size” clothing (ONE SIZE COLLECTION). The line is really just an oversized version that fits most women.

So that’s my tip of the day: If you’re into dresses, (and this really only works for the very simple styles, try on a couple of sizes larger than what you normally wear and see if that works for you!

So back to my story. The retail therapy worked! I retreated into the dressing room into my meditative state, took a bunch of cool selfies and emerged a butterfly in a better mood and ready to face the onslaught of my kids. The brain fog disappeared eventually, but I passed the time playing with my newly taken selfies!

Retail therapy definitely works, especially if the sun shines on you like it did on me today. I don’t make a habit of it, of course, but the stars were aligned for me today and I took advantage of that. I did buy a couple of size extra large dresses. You can find me modeling one of them in Instagram @idressmodest!

To better days ahead and more spring weather…

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idm store and blog

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I cannot help but connect my two blog sites (itsmyotherlife and idressmodest) when I write, as each is intertwined with the other into the fabric of my current life. I am spending this part of my life indulging my creative side, something that I haven’t had a chance to do until now. I am only able to do this because I am sick and had such a busy life before, that I am unable to do “nothing.” So I have these new passions: home decor, my dress shop and other little side projects that I am learning, like arm knitting.

But today is not about any of that. It’s about me and my day. I woke up feeling about as bad as I can with this strange illness called Sarcoidosis. My head was stuffed with fog and to top it off, I was in a perfectly rotten mood because of…

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finding humor…

My favorite thing to do...

how much frustration can a sick person take?

As I've alluded to before, one of the organs that sarcoidosis attacked is my digestive system. I was found to have granulomas all over the lining of my belly (peritoneum) during a laparoscopy to fix a hernia in my belly button caused in part by the severe bloating. Two years ago I was scheduled for … Continue reading how much frustration can a sick person take?

recently on southwest airlines…

Here's a glimpse into my life with Sarcoidosis. My husband needed to visit his father in Florida and we took a free flight with Southwest where I accrue points through frequent visits to the Cleveland Clinic.  I go all the way to Cleveland where my insurance covers less because it is there that I found … Continue reading recently on southwest airlines…

making do…

I feel like I'm the only one who is literally paralyzed by brain fog and extreme exhaustion! I belong to the Facebook group "Sarcoidosis Health and Fitness," where it seems that everyone is running, spinning and doing massive amounts of daily exercise in addition to their normal daily routine! I cannot wrap my brain around … Continue reading making do…

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