raising awareness of Sarcoidosis

Sarcoidosis is a chronic illness with no cure.

how much frustration can a sick person take?

As I've alluded to before, one of the organs that sarcoidosis attacked is my digestive system. I was found to have granulomas all over the lining of my belly (peritoneum) during a laparoscopy to fix a hernia in my belly button caused in part by the severe bloating. Two years ago I was scheduled for … Continue reading how much frustration can a sick person take?

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recently on southwest airlines…

Here's a glimpse into my life with Sarcoidosis. My husband needed to visit his father in Florida and we took a free flight with Southwest where I accrue points through frequent visits to the Cleveland Clinic.  I go all the way to Cleveland where my insurance covers less because it is there that I found … Continue reading recently on southwest airlines…

making do…

I feel like I'm the only one who is literally paralyzed by brain fog and extreme exhaustion! I belong to the Facebook group "Sarcoidosis Health and Fitness," where it seems that everyone is running, spinning and doing massive amounts of daily exercise in addition to their normal daily routine! I cannot wrap my brain around … Continue reading making do…

idressmodest.com

idressmodest dress shop sells modest clothing for women that is on trend and fashionable. The store donates 5% of its profits to FSR the Foundation for Sarcoidosis Research.

my bathtub…

I recently got a bathtub. Don't get me wrong. I live in a very nice home with a very nice bathroom, just it only came with a shower. I don't consider myself to be a spoiled person and I am very accustomed to living with hardship, so given that the house was perfect in every … Continue reading my bathtub…

neurosarcoidosis…

this morning

This is a morning where I can't even partake in social media. I literally can barely watch a movie. I got a contraption that holds my phone too which really spoils me! It loops around my neck and frees my hands. I feel like a tech-bot. I've been playing with the Instagram face additions in … Continue reading this morning

what goes up…

must come down. But not everthing that goes in must come out, as I have dreadfully discovered. When the food that went in a week ago still hasn't made its way out, there's a BIG problem My big problem is my BIG belly. It's hard to breathe and it can be painful. As it gets … Continue reading what goes up…

idressmodest-my busyness business

For anyone who might be interested... Modest dresses, skirts, sweaters and accessories for women. — Read on idressmodest.com/

avoidance behavior?

Before I get into rambling...I really wanted to thank all my new followers and old friends for commenting recently on my posts and for following my blog. I felt so warmly welcomed into the writer's community on WordPress! I've so enjoyed discovering posts by others that describe what I am going through with the disease … Continue reading avoidance behavior?

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